Strep Throat OCD: Understanding the Connection and Treatment Options

Strep Throat OCD: Understanding the Connection and Treatment Options
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Dr. Roseann Capanna-Hodge

Curious about the link between strep throat and OCD symptoms in children? For some, an immune reaction to a strep infection may inadvertently target the brain, leading to abrupt onset of OCD signs. This nightmarish condition is referred to as PANDAS and affects more children than most realize.

PANS/PANDAS families come from all over the world with stories of misdiagnosis and improper treatment before they get to me. As a therapist and PANS/PANDAS strategist my goal isn't just to help calm their nervous system but help parents with PANS/PANDAS treatment planning.

The Link Between Strep Throat and OCD

Remarkably, streptococcal infections such as strep throat can lead to the onset of obsessive-compulsive disorder symptoms in children. This is due to an abnormal immune response where antibodies created by the body to combat strep bacteria may inadvertently target brain tissue because of a process called molecular mimicry. This occurs when similarities between the bacteria and bodily tissues prompt an autoimmune reaction stemming from the infection.

This situation can cause a production of cross-reactive antibodies that assault areas within the brain responsible for regulating behavior and movement. This attack on neural pathways often precipitates tics and abrupt outbreaks of OCD symptoms in affected children, leading them into distressing compulsions or overwhelming anxieties seemingly without warning. It’s not merely about battling with sore throats or a streptococcal infection anymore, but rather grappling with consequences far more perplexing for both children and relatives alike.

It is important to note that these aberrant immune reactions are not exclusive to OCD alone but are also implicated in other disorders connected with streptococcal infections like Tourette syndrome or rheumatic fever. Recognizing such links plays a crucial role in identifying cases potentially related to PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections), which allows health care providers one step closer to appropriate interventions aimed at managing these challenges effectively.

What is PANDAS Syndrome?

PANDAS stands for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. These disorders are a byproduct of an autoimmune response to strep throat, and were identified in the 1990s. They typically affect children from age three up until puberty and manifest as a sudden emergence or exacerbation of OCD (obsessive-compulsive disorder) symptoms and tic disorders following an infection with strep bacteria.

The onset of PANDAS is characteristically rapid, developing within a few days or weeks after the child has suffered from a strep infection. Signs that may alarm parents include drastic shifts in their child’s behavior—uncharacteristic moodiness, anxiety, aggression—as well as the unexpected development of tics or obsessive-compulsive behaviors, which can be disruptive to everyday functioning. Due to its swift and severe impact on behavior, it is important for families to identify these indicators early so that professional health care can be sought promptly.

Unlike other pediatric acute-onset neuropsychiatric syndromes—which might originate from various infections or even non-infectious environmental triggers—the hallmark cause behind PANDAS is specifically related to an inappropriate immune attack triggered by an attempt at eradicating invading streptococcus bacteria whereby this defense mechanism mistakenly targets brain tissue instead.

Symptoms of PANDAS

A variety of signs can manifest in children with PANDAS, not just those associated with OCD. Common indications include tics, abrupt shifts in mood, heightened irritability and sudden emotional ups and downs. Your child might appear normal one day but then show intense anxiety or compulsive tendencies out of the blue on another day. These symptoms tend to vary over time—intensifying for periods before settling into phases where the child seems more at ease.

It’s crucial to spot these changes quickly for prompt intervention. Parents should be particularly alert when they notice new or escalating symptoms related to OCD behavior that align with a recent bout of strep infection. By being observant, parents play a pivotal role in securing early and effective treatment for their child’s condition.

Is It PANDAS? Quick Diagnosis Checklist

Diagnosing PANDAS

Diagnosing PANDAS necessitates a meticulous examination of the symptoms and their emergence in connection with strep infections. The critical diagnostic criteria encompass the abrupt appearance of OCD or tic symptoms after an infection with strep throat, where such symptoms are intense enough to disrupt daily activities and may manifest as complex or peculiar tics.

Healthcare providers will seek out undeniable evidence of timing between the presentation of these symptoms and a prior strep infection, which can be substantiated by positive results on throat culture tests or raised antibody levels. This strong link is crucial for distinguishing PANDAS from other neuropsychiatric disorders so that appropriate treatment tailored specifically for the affected child can be administered.

Treatment Options for PANDAS

Addressing active strep infections in children with PANDAS typically begins by administering antibiotics, which is vital for controlling acute episodes and averting complications. It’s important to note that these antibiotics are often utilized specifically for current infections but may also be needed for elevated strep titers.

To effectively manage OCD symptoms associated with PANDAS alongside antibiotic treatment or other ways to treat PANDAS, cognitive-behavioral therapy (CBT), incorporating exposure and response prevention (ERP) techniques is used. This strategy assists children in facing their fears and diminishing compulsive behaviors by equipping them with strategies to navigate their symptoms.

Medications such as selective serotonin reuptake inhibitors (SSRIs) should be used with caution by your child's doctor. It’s noteworthy that children affected by PANDAS might exhibit heightened sensitivity to the side effects of SSRIs. Thus careful dosage adjustments and vigilant monitoring are imperative when we treat PANDAS.

Treatment plans for PANDAS are tailored according to symptom severity for most children. While some cases may necessitate antibiotics combined with behavioral therapy, other more severe instances could require a broader range of combined interventions aimed at treating the condition along with other neuropsychiatric symptoms Continuous observation paired with a customized approach stands paramount for successful management of a child's symptoms such as obsessive compulsive behavior, Tourette's Syndrome, Sydenham chorea or other mental health issues.

Advanced Treatments: Plasma Exchange and IVIG

Children suffering from severe PANDAS may experience substantial improvement through sophisticated therapies such as plasma exchange and intravenous immunoglobulin (IVIG). The objective of these treatments is to diminish the autoimmune reaction that exacerbates neuropsychiatric symptoms.

Nevertheless, it’s critical to consider the advantages alongside any potential adverse effects. Despite the high efficacy rate of plasma exchange and IVIG in alleviating symptoms, they carry associated risks. Consequently, parents are advised to engage in comprehensive discussions with their healthcare providers regarding these treatment options.

Plasma Exchange or Plasmapheresis

In children who are severely affected by PANDAS, a process called plasmapheresis, or plasma exchange, which entails the removal and substitution of blood plasma to purge harmful antibodies, can be highly effective. This therapy aims to diminish the autoimmune reaction associated with PANDAS and thus relieve its symptoms.

IVIG

Intravenous immunoglobulin (IVIG) therapy involves infusing high doses of immunoglobulin to modulate the immune system and reduce the autoimmune attack on the brain. Studies have shown that IVIG can significantly reduce neuropsychiatric symptoms in PANDAS patients, with some experiencing up to 45% reduction in symptoms. In some cases, a single IVIG treatment can lead to long-term symptom relief, making it a promising option for those severely affected.

Although IVIG shows impressive short-term benefits, the long-term outcomes are still under study. Initial results are promising, with many children experiencing lasting improvements. However, it’s important for parents to have realistic expectations and to follow up with their healthcare provider regularly.

Managing OCD Symptoms

Managing OCD symptoms in children who have PANDAS requires a comprehensive strategy. Cognitive-behavioral therapy (CBT) with Exposure and Response Prevention (ERP) is pivotal for assisting these children in controlling their obsessive-compulsive behaviors and lowering stress levels. These therapeutic approaches aim to soothe the brain, thus providing kids with an improved capacity to regulate their feelings and actions.

It’s equally important to tackle issues like sleep disruptions and emotional fluctuations. Establishing a steady schedule along with maintaining a tranquil atmosphere contributes significantly to creating stability for youngsters suffering from PANDAS, which can aid in better symptom management.

Calm Brain Strategies for PANS/PANDAS and How They Help

Preventing Future Flare Episodes

It is essential to adopt preventive strategies to ward off subsequent occurrences of PANDAS. Vigilantly watching for initial indicators of strep infections and providing prompt treatment can halt potential exacerbations. It may also be beneficial for families to test every member for strep, which helps pinpoint any carriers and diminishes the chance of recurring infections.

Maintaining excellent hygiene practices such as sanitizing or changing out toothbrushes following antibiotic therapy plays an additional role in averting Strep infections. By implementing these precautions, one can decrease the chances of experiencing new episodes of PANDAS.

Working to calm the nervous system with tools such as neurofeedback, PEMF, essential oilsmagnesium and other supplements are important. 

When to Seek Help

If a child shows immediate or intense symptoms of OCD or tics following a strep infection (or any infection), it is crucial for parents to obtain medical assistance. If the child also experiences behavioral shifts like heightened irritability, episodes of anxiety, or fluctuations in mood, this may be a sign of PANS or PANDAS.

It is important to recognize that a sudden onset of a mental health problem isn't normal.

Should these symptoms continue over an extended period—typically exceeding one week—or if they severely disrupt everyday activities, reaching out to a healthcare provider or your child’s physician is advisable. Prompt attention can greatly influence the control and treatment of PANDAS and enhance the well-being of the affected child.

Dr. Roseann's BrainBehaviorReset® Program

I have created the BrainBehaviorReset® initiative, a program meticulously tailored to aid children struggling with mental health challenges, notably PANS and PANDAS with or without OCD. This approach incorporates therapies such as Neurofeedback and Biofeedback to calm the nervous system and tackle root causes.

In collaboration with parents, I guide them in grasping and addressing their child’s unique requirements.My pioneering strategies provide encouragement and for many efficacious outcomes for families grappling with PANDAS and PANS.

Your Next Steps If You Suspect Strep Throat OCD (PANDAS)

Grasping the link between strep throat and OCD is crucial for families navigating PANDAS, as it can transform a child’s well-being. Acknowledging the symptoms of strep, promptly pursuing diagnosis, and considering different treatment possibilities are key steps in enhancing your child’s life. 

It’s important to remember that there is support and successful treatments out there—you’re not isolated on this path and our Dysregulation Solution and CALM Brain Community is there to support you every step of the way.

You can also listen to my podcast to learn more about natural solutions for dysregulated kids.

Key Takeaways

  • Strep throat can trigger OCD in children through an autoimmune response when antibodies mistakenly attack the brain, leading to conditions like PANDAS.
  • PANDAS is characterized by a sudden onset of obsessive-compulsive symptoms and tics following a strep infection, requiring careful evaluation for diagnosis and treatment.
  • Effective treatment for PANDAS often includes antibiotics, cognitive-behavioral therapy, and, in severe cases, advanced options like plasma exchange or IVIG.

What are the first signs of PANDAS in a child?

The first signs of PANDAS usually show up as sudden OCD symptoms or tics, along with heightened irritability and anxiety, often following a strep infection.

If you notice these changes in your child, it’s important to seek help.

How is PANDAS diagnosed?

PANDAS is diagnosed by connecting the sudden onset of OCD or tic symptoms to a recent strep infection, confirmed through throat cultures or high antibody levels.

It’s all about making that crucial link between symptoms and infection!

What are the treatment options for PANDAS?

In addressing PANDAS, a range of treatment strategies are available, including the administration of antibiotics to tackle strep infections. Additional therapies consist of cognitive-behavioral therapy and SSRIs. In more extreme situations, patients might undergo advanced procedures such as plasma exchange or IVIG.

Consulting with a medical professional is crucial in order to determine an optimal course of action for either yourself or your child regarding these treatments.

How can I prevent future PANDAS episodes?

In order to avoid subsequent episodes of PANDAS, it is crucial to be vigilant for initial signs of a strep infection. It’s also important to test family members who may be carriers and ensure proper hygiene practices such as sterilizing or replacing toothbrushes once antibiotic treatment has been completed.

Being proactive is essential in managing this condition!

When should I seek medical help for my child?

You should seek medical help for your child if they show sudden or severe OCD or tic symptoms after a strep infection, or if behavioral changes are significantly affecting their daily life. It’s always better to be cautious when it comes to your child’s well-being.

Citations

Cabrera-Mendoza, B., Genis-Mendoza, A. D., & Nicolini, H. (2019). Diagnosis in PANDAS: An Update. Current Psychiatry Research and Reviews Formerly: Current Psychiatry Reviews, 15(4), 237–247. https://doi.org/10.2174/2666082215666190917161514

Dr. Roseann is a mental health expert in PANS/PANDAS who is frequently in the media:

Always remember… “Calm Brain, Happy Family™”

Disclaimer: This article is not intended to give health advice and it is recommended to consult with a physician before beginning any new wellness regime. *The effectiveness of diagnosis and treatment vary by patient and condition. Dr. Roseann Capanna-Hodge, LLC does not guarantee certain results.

Are you looking for SOLUTIONS for your struggling child or teen? 

Dr. Roseann and her team are all about science-backed solutions, so you are in the right place! 

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Dr. Roseann is a Children’s Mental Health Expert and Licensed Therapist who has been featured in/on hundreds of media outlets including The Mel Robbins Show, CBS, NBC, PIX11 NYC, Today, FORBES, CNN, The New York Times, The Washington Post, Business Insider, Women’s Day, Healthline, CNET, Parade Magazine and PARENTS. FORBES called her, “A thought leader in children’s mental health.

Dr. Roseann - Brain Behavior Reset Parent Toolkit

She coined the terms, “Re-entry panic syndrome” and “eco-anxiety” and is a frequent contributor to media on mental health. 

Dr. Roseann Capanna-Hodge has three decades of experience in working with children, teens and their families with attention-deficit hyperactivity disorder (ADHD), autism, concussion, dyslexia and learning disability, anxiety, Obsessive Compulsive Disorder (OCD), depression and mood disorder, Lyme Disease, and PANS/PANDAS using science-backed natural mental health solutions such as supplements, magnesium, nutrition, QEEG Brain maps, neurofeedback, PEMF, psychotherapy and other non-medication approaches. 

She is the author of three bestselling books, It’s Gonna Be OK!: Proven Ways to Improve Your Child's Mental Health, The Teletherapy Toolkit, and Brain Under Attack. Dr. Roseann is known for offering a message of hope through science-endorsed methods that promote a calm brain. 

Her trademarked BrainBehaviorResetⓇ Program and It’s Gonna be OK!Ⓡ Podcast has been a cornerstone for thousands of parents facing mental health, behavioral or neurodevelopmental challenges.

She is the founder and director of The Global Institute of Children’s Mental Health, Neurotastic™Brain Formulas and Dr. Roseann Capanna-Hodge, LLC. Dr. Roseann is a Board Certified Neurofeedback (BCN) Practitioner, a Board Member of the Northeast Region Biofeedback Society (NRBS), Certified Integrative Mental Health Professional (CIMHP) and an Amen Clinic Certified Brain Health Coach.  She is also a member of The International Lyme Disease and Associated Disease Society (ILADS), The American Psychological Association (APA), Anxiety and Depression Association of America (ADAA) National Association of School Psychologists (NASP), International OCD Foundation (IOCDF).

© Roseann-Capanna-Hodge, LLC 2024

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