Navigating the complexities of Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) can be overwhelming for families. In this blog, we will explore a comprehensive approach to diagnosing and treating these conditions, emphasizing the importance of a holistic and integrative methodology as shared by expert Dr. Scott Antoine.
Understanding PANS and PANDAS
Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) are conditions that can emerge suddenly, often following an infection. These disorders are characterized by a rapid onset of neuropsychiatric symptoms, including obsessive-compulsive behaviors, anxiety, and mood swings. Understanding the underlying mechanisms is crucial for effective treatment.
Both PANS and PANDAS are believed to be triggered by infections that provoke an abnormal immune response. In PANDAS, the culprit is typically a streptococcal infection, such as strep throat, which can lead to an autoimmune response that mistakenly attacks the brain. In contrast, PANS can be triggered by a variety of infections, including Lyme disease and other environmental factors.
While strep infections are commonly associated with PANDAS, other infections, such as Lyme disease, can also trigger similar neuropsychiatric symptoms. Unfortunately, the overlap of symptoms between these disorders and other psychiatric conditions can lead to misdiagnosis
Recognizing the signs and symptoms early on is vital. Families often report that their child appeared perfectly healthy one day and then exhibited severe behavioral changes the next. This abrupt shift can leave parents confused and desperate for answers, prompting them to seek help from various healthcare providers.
Dr. Scott Antoine's Personal Journey
Dr. Scott Antoine's journey into the world of PANS and PANDAS began with his daughter, Emma. When Emma was just 12 years old, she experienced a sudden onset of severe obsessive-compulsive behaviors, including excessive hand washing and debilitating anxiety. As a physician, Dr. Antoine was initially at a loss, navigating through a maze of misdiagnoses and misunderstandings.
Despite his medical background, Dr. Antoine found himself in the same position as many parents—feeling overwhelmed and unsure of where to turn for help. It was through extensive research and a determination to find answers that he discovered the existence of PANDAS. This personal experience ignited a passion within him to help other families facing similar challenges.
Dr. Antoine's story exemplifies the importance of parental advocacy. His journey highlights how crucial it is for parents to be informed and proactive in seeking the right treatment for their children. His commitment to understanding PANS and PANDAS not only changed his daughter's life but also inspired him to share his knowledge with other parents and healthcare professionals.
The Challenges of Diagnosis
One of the most significant hurdles in addressing PANS and PANDAS is the challenge of obtaining an accurate diagnosis. Many children go through a lengthy process of misdiagnosis, often being labeled with conditions such as anxiety disorders or ADHD before the correct diagnosis is made.
Research indicates that it can take anywhere from two to five years for a child to receive a proper diagnosis of PANS or PANDAS. This delay is often due to a lack of awareness among healthcare providers, who may not recognize the symptoms as being related to an autoimmune response triggered by an infection.
For instance, a child exhibiting obsessive-compulsive behaviors may be treated for anxiety without considering the possibility of an underlying infection. This oversight can result in ineffective treatment approaches that do not address the root cause of the symptoms.
As a parent, witnessing your child struggle with these symptoms can be heartbreaking. It’s essential to advocate for a thorough evaluation that considers the potential impact of infections on your child’s mental health. Rapid strep tests and other diagnostic tools can help identify infections that may be contributing to neuropsychiatric symptoms.
The Need for Increased Awareness in the Medical Community
There is a pressing need for increased awareness and education about PANS and PANDAS within the medical community. Many healthcare providers remain uninformed about the complexities of these disorders, leading to a gap in understanding and treatment. This lack of awareness can have dire consequences for affected children and their families.
Dr. Antoine's experience highlights the importance of educating physicians about the signs and symptoms of PANS and PANDAS. By providing comprehensive training and resources, we can empower healthcare professionals to recognize these conditions and offer appropriate interventions.
Raising awareness among medical professionals is crucial for improving diagnosis rates and treatment outcomes. Parents often feel overwhelmed navigating the healthcare system, and having knowledgeable providers can make all the difference in their child's journey to recovery.
Common Infections Associated with PANS/PANDAS
While streptococcal infections are the most well-known trigger for PANDAS, several other infections can contribute to the development of PANS and PANDAS. These include:
Understanding the range of infections associated with these disorders can help parents and healthcare providers identify potential triggers. It’s essential to consider a child’s medical history, including recent infections, when evaluating neuropsychiatric symptoms.
By recognizing the various infections that can lead to PANS and PANDAS, we can better support affected children and their families in finding effective treatment options.
Integrative PANS/PANDAS Treatment Approaches
When it comes to pans/pandas treatment, a one-size-fits-all approach simply doesn't cut it. Each child is unique, and their treatment plans should reflect that individuality. Integrative PANDAS/PANS treatment combines both conventional medical practices and alternative therapies, creating a comprehensive strategy that addresses the physical, emotional, and psychological needs of the child.
As a parent, you may feel overwhelmed by the myriad of treatment options available. It's essential to take a step back and consider what works best for your child. This could mean a combination of antibiotics, cognitive behavioral therapy (CBT), and even dietary changes. The key is to work collaboratively with healthcare providers to devise a plan tailored to your child's specific symptoms and circumstances.
For instance, while antibiotics target the underlying infections, therapies like CBT can help manage the neuropsychiatric symptoms that arise. This dual approach not only treats the root cause but also equips your child with the skills to cope with their symptoms more effectively.
The Importance of Addressing Toxins
One critical aspect often overlooked in treatment for PANDAS/PANS is the role of environmental toxins. Many children with these conditions have been found to have elevated levels of mycotoxins, which can significantly impact their immune system and overall health. These toxins can linger in the body, particularly in fatty tissues, including the brain, leading to ongoing immune dysregulation.
Identifying and removing these toxins is crucial in managing PANDAS/PANS effectively. This may involve testing for heavy metals, mold exposure, and other environmental factors that could be exacerbating your child's symptoms. By addressing these underlying issues, you may find that your child's symptoms improve significantly, paving the way for a more effective treatment plan.
As a parent, it can be daunting to navigate this process. However, understanding the importance of a toxin-free environment can empower you to make changes that positively affect your child's health. Simple steps such as improving indoor air quality, reducing exposure to chemicals, and ensuring a clean living space can make a significant difference.
Immune Regulation and Treatment Options
Immune regulation is a cornerstone of effective treatment for PANDAS/PANS. Since these disorders stem from an autoimmune response, it's vital to restore balance to the immune system. This can be achieved through various methods, including the use of immunoglobulin therapy (IVIG), low-dose naltrexone (LDN), and other immune-modulating medications.
IVIG has been shown to be particularly beneficial for children who are severely affected, helping to regulate the immune response and reduce neuropsychiatric symptoms. While not all children will require this treatment, it can be a game-changer for those who do.
Additionally, low-dose naltrexone is gaining traction as a natural treatment for PANS/PANDAS. This medication works by modulating the immune system, offering a less invasive alternative to traditional therapies. It's crucial to consult with a healthcare provider who understands these treatment options and can guide you in making the best decisions for your child's health.
Neurological Symptoms and Behavioral Therapy
Neurological symptoms are often at the forefront of PANDAS/PANS, making behavioral therapy an essential component of treatment. Cognitive behavioral therapy (CBT) can be particularly effective in addressing obsessive-compulsive behaviors, anxiety, and mood swings. By teaching children coping strategies and helping them reframe negative thought patterns, CBT can significantly improve their quality of life.
It's important to remember that therapy should not be limited to the therapist's office. Parents play a crucial role in reinforcing these strategies at home. Regular practice of coping techniques and open communication about feelings can help your child feel more supported and understood.
Additionally, combining behavioral therapy with other modalities, such as neurofeedback or mindfulness practices, can enhance the overall effectiveness of treatment. These approaches can help regulate brain activity and promote emotional stability, leading to improved outcomes for your child.
Empowerment and Hope for Families
As a parent navigating the challenges of PANDAS/PANS, it's easy to feel helpless and overwhelmed. However, it's essential to remember that there is hope. Many families have successfully navigated this journey, finding relief for their children through a combination of medical treatments and supportive therapies.
Empowerment comes from understanding the condition and advocating for your child. This means seeking out knowledgeable healthcare providers, staying informed about treatment options, and being proactive in your child's care. Joining support groups and connecting with other families can also provide invaluable resources and encouragement during difficult times.
Healing is not always linear, and there may be setbacks along the way. However, maintaining a hopeful outlook and focusing on small, achievable goals can help you and your child stay motivated. Celebrate the victories, no matter how small, and remember that progress is possible.
Creating Hope and a Path Forward
The journey to recovery from PANDAS/PANS can be complex and challenging, but it is important to remember that healing is achievable. By taking a comprehensive, integrative approach to treatment, addressing infections, removing toxins, regulating the immune system, and utilizing behavioral therapies, families can find effective strategies to manage their child's symptoms.
As parents, your intuition and advocacy are powerful tools in this process. Trust your instincts, seek out the support you need, and remain committed to your child's well-being. With the right treatment and a supportive environment, your child can experience significant improvement and lead a fulfilling life.
Remember, you are not alone on this journey. There are resources, professionals, and communities ready to support you every step of the way. Together, we can foster a brighter future for children affected by PANDAS and PANS.
Dr. Roseann is a mental health expert in Self-Regulation who frequently is in the media:
- Healthline Understanding Self-Regulation Skills
- Scary Mommy What Is Self-Regulation In Children, And How Can You Help Improve It?
- The Warrior Parent Podcast It's Gonna Be OK! Changing Behaviors and Responses (And The Magic of Magnesium)In Your Family with Dr. Roseann Capanna-Hodge
Always remember… “Calm Brain, Happy Family™”
Disclaimer: This article is not intended to give health advice and it is recommended to consult with a physician before beginning any new wellness regime. *The effectiveness of diagnosis and treatment vary by patient and condition. Dr. Roseann Capanna-Hodge, LLC does not guarantee certain results.
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Dr. Roseann is a Children’s Mental Health Expert and Licensed Therapist who has been featured in/on hundreds of media outlets including The Mel Robbins Show, CBS, NBC, PIX11 NYC, Today, FORBES, CNN, The New York Times, The Washington Post, Business Insider, Women’s Day, Healthline, CNET, Parade Magazine and PARENTS. FORBES called her, “A thought leader in children’s mental health.”
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Dr. Roseann Capanna-Hodge has three decades of experience in working with children, teens and their families with attention-deficit hyperactivity disorder (ADHD), autism, concussion, dyslexia and learning disability, anxiety, Obsessive Compulsive Disorder (OCD), depression and mood disorder, Lyme Disease, and PANS/PANDAS using science-backed natural mental health solutions such as supplements, magnesium, nutrition, QEEG Brain maps, neurofeedback, PEMF, psychotherapy and other non-medication approaches.
She is the author of three bestselling books, It’s Gonna Be OK!: Proven Ways to Improve Your Child's Mental Health, The Teletherapy Toolkit, and Brain Under Attack. Dr. Roseann is known for offering a message of hope through science-endorsed methods that promote a calm brain.
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She is the founder and director of The Global Institute of Children’s Mental Health, Neurotastic™Brain Formulas and Dr. Roseann Capanna-Hodge, LLC. Dr. Roseann is a Board Certified Neurofeedback (BCN) Practitioner, a Board Member of the Northeast Region Biofeedback Society (NRBS), Certified Integrative Mental Health Professional (CIMHP) and an Amen Clinic Certified Brain Health Coach. She is also a member of The International Lyme Disease and Associated Disease Society (ILADS), The American Psychological Association (APA), Anxiety and Depression Association of America (ADAA) National Association of School Psychologists (NASP), International OCD Foundation (IOCDF).
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