Dealing with Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) can be challenging not just for those diagnosed with them but also for their families. These conditions also take an emotional toll on them which cannot be overlooked as the impact of PANS and PANDAS extends beyond the physical symptoms, affecting mental well-being, relationships, and overall quality of life.
As a mom with a personal experience in dealing with children with PANS diagnosis, I want to delve into the treatment options for PANS and PANDAS to educate more parents considering the fact that there's still a lot of misinformation surrounding these conditions, along with a lack of trained medical professionals and mental health providers.
Common features of PANS/PANDAS and their symptoms.
PANS and PANDAS encompass a range of symptoms that may sound familiar to many. From struggling with attention to experiencing OCD tendencies, tics, separation anxiety, and more, the list can be extensive. Symptoms can manifest as frequent urination, school refusal, anger outbursts, brain fog, and a regression in skills, especially in learning areas like reading and math.
Additionally, issues with coordination, memory, sleep disturbances, migraines, and headaches are common. It's important to note that there are core symptoms that must be present, including a sudden onset or a worsening of existing symptoms. This worsening can be drastic, transitioning from ADHD-like behaviors to severe memory loss or even seizures, particularly in cases involving tick-borne infections or exposure to toxins like mold. While tics and OCD are prevalent, other symptoms such as depression can also emerge, resulting in a complex array of diagnoses.
It's crucial to recognize that a sudden onset of symptoms in a child is not normal, and it shouldn't be dismissed as mere psychosis, especially in younger kids where tick-borne illnesses or parasites can induce such states. When faced with this situation, it's essential to advocate for thorough evaluation for PANS and PANDAS and seek the necessary support.
Treating PANS/PANDAS with a 5-pronged approach.
When it comes to treating PANS and PANDAS, there's no one-size-fits-all solution. Factors like genetic differences, stress, and other health conditions influence how individuals respond to treatment.
A five-pronged approach is often used, which includes antimicrobial therapy, toxin treatment, immune therapy, addressing genetic factors, and managing other health issues. Antibiotics, both traditional and herbal, are commonly used, but longer treatment durations may be needed for tick-borne infections. Anti-inflammatory drugs, including natural remedies like turmeric and essential oils, can be beneficial in reducing brain inflammation, which is often a significant barrier to recovery.
In addition to antimicrobial and immune therapies, it's crucial to address calming the nervous system and proper detoxification. Neglecting these aspects can hinder progress. Techniques such as Pulsed Electromagnetic Field Therapy (PEMF), magnesium supplements, meditation, breathwork, and neurofeedback can help regulate the nervous system and aid in healing.
Other treatments like plasmapheresis can also be effective but are typically reserved for later stages due to their intensity. It's essential to consider a range of treatments and keep an open mind, including the use of herbal remedies with a long history of efficacy, backed by research from other cultures.
Having a trusted and qualified healthcare provider to guide you through the process is key. Behavioral therapy and family support are also essential components of treatment, as they help manage symptoms and foster progress. Taking a holistic approach, including natural therapies like dietary changes and supplements, is often necessary for long-term improvement and preventing future flares.
By integrating natural therapies into a comprehensive care plan, individuals with PANS and PANDAS can find relief and support for their journey toward healing. Remember that consistency and persistence can make a significant difference in the treatment process.
For more information, you may read the following blog posts:
5 Surprising Ways Magnesium Helps ADHD Anxiety OCD and Depression
The Best Diet for Children With Pans and Pandas
Clinical Guide Pans and Pandas
To learn more about Dr. Roseann Capanna-Hodge and science-backed mental health solutions, please visit www.drroseann.com.
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